Our own Suzy Conner, Property Manager at our Greenbriar Road location, helped raise funds and awareness for the 2013 Rock the Runway Fashion Show on September 7, 2013. The event was held at the TPC Banquet Center on Farm Drive in York. The fashion show was presented by Old Navy and Mudpies N Butterflies Photography, and the proceeds benefitted Life Touch Global and sweet little Noah, Suzy’s grandson, who is pictured on the left.
Life Touch Global is a non-profit organization that is committed to supporting medical missions all over the world. This year’s fashion show raised money for Life Touch and for Noah, a spunky little 2 year old boy, who had been suffering from End Stage Renal Failure. Noah was born with Eagle-Barret Syndrome or Prune Belly. This condition affects 1 out of every 40,000 births and 97% affected are males. It is a congenital disorder that is basically a lack of stomach muscles. Surgery is often required for enlarged internal organs, and many complications arise from enlarged or malformed kidneys such as dialysis or a kidney transplant. You can learn more about this condition by visiting www.prunebelly.org.
Proceeds raised through ticket sales and raffles at the event benefitted Noah and his family for needed expenses. Many local businesses and individuals donated products and services for the raffle in a show of support. Mudpies N Butterflies donated professional photography at the event, and the fashion show was recorded for TV by Jump, Inc. Moove In Self Storage donated a gift certificate for Two Free Months of Rent at our Greenbriar Road location along with a goodie bag full of candy, a pen and a cow key chain. Apple Chevrolet, White Rose Bar and Grill, White Jewelers, Serenity Spa and several others also donated to the raffle.
Little Noah has had 10 operations in his short life. In November 2012 he had both of his kidneys removed. In December 2012 he had surgery to help fix his stomach muscles and was on dialysis every night from November 2012 through August 2013. Then, in August 2013 he received his new kidney from his dad! After the operation, the doctors gave Noah the go ahead to eat food for the first time. His greatest challenge since receiving his new kidney has been learning how to swallow his food. Even though it is hard work, he loves eating quite a bit!
Through it all, Noah has had a great outlook on life. He is a very caring little boy who is loving and very funny. He is really outgoing and loves to be around people. Most days you will catch him smiling. Like any typical 2 year old boy, he loves helicopters, trains and his brother Jaxen, as well as playing outside. And, his favorite show is Mickey Mouse Club House.
There was a wonderful turn out with over 100 people attending, outstanding snacks for everyone to enjoy and the kids in the fashion show had a blast. Even if you missed this great event, you can still make donations to help Noah and his family with medical and other expenses.
You can visit the Noah’s Fund facebook page to make a contribution, or you can mail a check or money order made payable to: Wanda Stoner, 910 Copenhaffer Road, York PA 17404.